Pain and Agony Awareness Day

27/365: fractured reality/grace under pain Creative Commons License photo credit: Journal Girl Kira

Sorry ’bout the title. It’s Chronic Fatigue and Fibromyalgia Awareness Day again. I haven’t done anything this year to raise awareness, except I’ve tried to sum up Chronic Fatigue and Fibromyalgia in 140 characters on Twitter.
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Hey look at me! May 12th - CFS/ME (FMS) Awareness day.

Check this out! I have blue hair:
I have blue hair!

There’s no easy way to say this - it’s a real tongue twister… here goes:

Myalgic Encephalomyelitis, Chronic Fatigue Syndrome and Fibromyalgia Syndrome.
ME and CFS are roughly the same thing, while FMS has different systems - you’d never know if someone had it unless they told you. You might guess something was wrong with them, but you may not notice anything is up with them at all.

» Continue reading Hey look at me! May 12th - CFS/ME (FMS) Awareness day.


Sleepless Nights

Just when I start to think that maybe we’ll cope, and things couldn’t get any worse then they were before, turns out I’m wrong.

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