Comments on: Hey look at me! May 12th - CFS/ME (FMS) Awareness day.

By: Pain and Agony Awareness Day » nunnone.com

Pain and Agony Awareness Day » nunnone.com — Mon, 12 May 2008 06:03:39 +0000

[...] Natalie left a comment on my post from two years ago, and told me about the videos she’s been making on Youtube. I particularly thought this one appropriate: [...]

By: joshnunn

joshnunn — Mon, 12 May 2008 03:12:45 +0000

Hey bernarda! Thank you for your kind words.

On that ‘purines’ idea (I had to wikipedia it)

Purines are found in high concentration in meat and meat products, especially internal organs such as liver and kidney. Plant based diet is generally low in purines.

Examples of high purine sources include: sweetbreads, anchovies, sardines, liver, beef kidneys, brains, meat extracts, herring, mackerel, scallops, game meats, and gravy.

A moderate amount of purine is also contained in beef, pork, poultry, fish and seafood, asparagus, cauliflower, spinach, mushrooms, green peas, lentils, dried peas, beans, oatmeal, wheat bran and wheat germ.

Mil eats nothing from the “high” group already, but eliminating the “moderate” group would remove pretty much the rest of her diet: spinach, asparagus, poultry, mushrooms, lentils, beans and oatmeal. We couldn’t do it.

By: joshnunn

joshnunn — Mon, 12 May 2008 01:12:45 +0000

wikipedia it)

Purines are found in high concentration in meat and meat products, especially internal organs such as liver and kidney. Plant based diet is generally low in purines.

Examples of high purine sources include: sweetbreads, anchovies, sardines, liver, beef kidneys, brains, meat extracts, herring, mackerel, scallops, game meats, and gravy.

A moderate amount of purine is also contained in beef, pork, poultry, fish and seafood, asparagus, cauliflower, spinach, mushrooms, green peas, lentils, dried peas, beans, oatmeal, wheat bran and wheat germ.

Mil eats nothing from the "high" group already, but eliminating the "moderate" group would remove pretty much the rest of her diet: spinach, asparagus, poultry, mushrooms, lentils, beans and oatmeal. We couldn't do it.

By: bernarda

bernarda — Mon, 12 May 2008 01:00:57 +0000

Happy CFS/ME/FMS day to you too. Ask your wife to try and eliminate all the purines in her diet. This is part of the FMS presentation [as i have it] and reduces pain and fatigue caused after eating any foods with purines in them.

Love the blue hair. Your an angel for your love and support. So much criticism and prejudice abounds with these conditions, that it is refreshing to see how much you love your wife who is ill.

By: joshnunn

joshnunn — Sun, 20 Apr 2008 08:37:06 +0000

Wow Natalie, thank you for dropping by, I’ve checked out your video: http://www.youtube.com/watch?v=qREb3B5erSQ and I think it’s pretty good. People need to know a bit more about CFS, and we need people like you who can tell their stories about it.

By: Natalie, CFS/ME suffered.

Natalie, CFS/ME suffered. — Sun, 20 Apr 2008 03:51:54 +0000

Hey, came acorss this randomly. good for you! I am a CFS/ME sufferer (mainly bed bound). Although I don;t have FMS I can imagine a fair bit of what your wife is going through. I have had FMS symtpoms with my CFS, not, nice. I describe it as I as a bag of bones and as someone was puttingme bag togetehr they slammed all my joitns bag in place.

I jsut made a youtube video for awareness day my scattered brain managed to leave out so much. Babble babble babble.

All the best to your wife. I should get my partner to dye his hair blue...

The hopeless video is still upladoing but my user name on youtube is obscenely.

x

By: Maggie Wallace

Maggie Wallace — Tue, 23 May 2006 11:21:44 +0000

What a great idea! We went to demonstrate outside the Dept of Health in London. If you’re curious I’ve written about it on my blog.

Maggie in Liverpool, UK.

By: Maggie Wallace

Maggie Wallace — Tue, 23 May 2006 09:21:44 +0000

What a great idea! We went to demonstrate outside the Dept of Health in London. If you’re curious I’ve written about it on my blog.

Maggie in Liverpool, UK.

By: Kerrie

Kerrie — Fri, 12 May 2006 05:53:12 +0000

Yay Josh! Good on ya. You’re my hero.

Kerrie, CFS sufferer.

By: Kerrie

Kerrie — Fri, 12 May 2006 03:53:12 +0000

Yay Josh! Good on ya. You’re my hero.

Kerrie, CFS sufferer.